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Posts tagged "drug resistant TB"
Civil Society Capacity Building for DR-TB Regional Meeting

Civil Society Capacity Building for DR-TB Regional Meeting

When new, effective medicines providing safe treatment for widespread debilitating diseases, it is vitally important to ensure that everyone who needs such medicines has access to them. It was with this aim therefore that TBEC held a regional meeting on civil society capacity building for DR-TB. Existing TB treatments are incredibly gruelling for the patient, but medical innovations (shorter or safer treatments, new medicines, or more exact methods of diagnosis) can genuinely relieve a patient’s suffering. But what use are such innovations if patients aren’t able to access them? What use are new medicines if there’s no way for hospitals to buy them or any way to prescribe that they are needed? Any measurement of the success of innovative treatments has to be countered by an assessment of their accessibility. When everyone has access to new treatments, we can start to talk about how successful they are. Guidelines on DR-TB Treatment The recent WHO recommendations on drug-resistant TB (DR-TB) are the first in a long time that provide a genuine possibility to start to improve the treatment of DR-TB by using innovative and more effective medicines with less debilitating side effects. It is therefore vital that we do not waste time; More…

Regional Meeting on Civil Society Capacity Building for DR-TB treatment in EECA

TB Europe Coalition (TBEC) is organising a  regional meeting on capacity building of civil society to advocate for safe and affordable drug-resistant TB (DR-TB) treatment in the region of Eastern Europe and Central Asia. This will take place from 18th-20th June 2019 in Kiev, Ukraine. We particularly welcome applications from representatives of patient groups, organizations working with vulnerable groups of people living with TB or TB/HIV, as and representatives of civil society organizations which advocate for access to TB/HIV treatment. The deadline for submissions has passed. Meeting Objectives: Increase understanding of the principles of the new WHO guidelines on DR-TB for achieving quality people-centered and rights-based TB care; Map barriers to the launch of the new WHO DR-TB guidelines in different countries and define the role of civil society in overcoming these barriers; Define ways for civil society actions to build demand among people undergoing TB treatment for the use of the new and safe medicines; Increase understanding of the role of informed consent in relation to treatment options as a human-rights based tool and to support civil society to improve practices of informed consent in their home countries and manage ethical considerations. Increase understanding of tools for monitoring of side More…

International course on clinical management of M(X)DR-TB for WHO Europe Region countries

International course on clinical management of M(X)DR-TB for WHO Europe Region countries

The WHO Collaborating Centre for Research and Training in Management of MDR-TB in Latvia announced an opportunity for clinicians and responsible for clinical managemnet of DR-TB to join their course. The main objective of the course is to update knowladge of the participants on the latest global development in M(X)DR-TB, as well as develop skills for M(X)DR-TB case management in their respective countries. The course will be available in Russian and English (according to schedule) and will last for 9 working days. For more details about the course please click here: International Advanced Course in clinical management of DR TB. Your completed application (click here: Application form WHO CC ) please send to the Tuberculosis Foundation of Latvia. E: info@ltbf.lv This blog is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this blog represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use More…

A new study highlights potential for social media to support MDR-TB patients

A new study highlights potential for social media to support MDR-TB patients

A study – “I can also serve as an inspiration” – a role for social media in supporting patients undergoing treatment for multidrug-resistant tuberculosis (MDR-TB)” – was published this week in PLOS ONE by Médecins Sans Frontières (MSF). It highlights the potential for social media to support patients undergoing treatment for multidrug-resistant (MDR) and extensively drug-resistant (XDR) tuberculosis (TB). The qualitative research examined the experiences of patients and health staff involved in the ‘TB & ME’ collaborative blogging project for patients undergoing treatment for MDR and XDR TB around the world. The current treatment for MDR-TB can take up to 2 years and has a low cure rate, which is partially because of serious side-effects that make adherence to the TB drugs challenging. Therefore, support for adherence to treatment remains a critical element to cure. Participants in the MSF study reported that blogging was seen to help patients to continue with their treatment. The online audience led to bloggers feeling encouraged by their followers, wanting to set a positive example for others and provided a distraction from the long and difficult treatment. No negative outcomes from taking part in the blogging project were mentioned by those involved in the study. More…

MDR-TB casts a shadow over Russia

MDR-TB casts a shadow over Russia

Tuberculosis and, in particular, drug-resistant forms of the disease have long been a burden on many countries in Eastern Europe and the Russian Federation is no exception. A video recently produced by Channel 4 News in the UK highlights the growing problem that the country has with multidrug-resistant TB in the general population but also in children and in prisons. The report also raises the worrying question of what will happen to rates of MDR-TB in the country give that many international donors have now left the country, ultimately as a result of political reasons as opposed to the fact that the country has the capacity or political urge to finance TB care and control itself. We have included the report, The Rising Spectre of tuberculosis across Russia, below but you can also read Victoria Macdonald’s (Health and Social Care correspondent at Channel 4 News) blog on her trip to Russia here.

EXPOSED: The Global Epidemic

EXPOSED: The Global Epidemic

This week, Aeras, an organisation dedicated to the development of effective tuberculosis (TB) vaccines, launched the first film – The Global Epidemic – in a series of shorts that tells the story of the deadly global epidemic of TB. The films are told through the eyes of TB patients, physicians, scientists, advocates and policymakers, thus making for particularly powerful viewing. Every year, approximately nine million men, women and children across the world become sick with TB, and 1.4 million die. This is a problem not just isolated to developing countries. As we frequently mention in our blogposts, TB remains a considerable problem in the region, particularly worrying are the increasing numbers of MDR-TB. Europe hosts some of the worst rates of the strain in the world. An estimated 76,000 MDR-TB cases occurred in the WHO European Region in 2011, accounting for nearly 25 percent of cases worldwide. The film covers the story of Natalie Skipper, an MDR-TB survivor, who explains how difficult MDR-TB is to treat both in terms of cost and in the devastating side-effects it has on patients and their loved ones. It also makes the important point that TB is a disease that does not respect borders or target More…

Urge your Member of EU Parliament to sign Written Declaration 0007/2013

Urge your Member of EU Parliament to sign Written Declaration 0007/2013

The TB Europe Coalition will shortly release a toolkit that European citizens can use to encourage their MEPs to sign Written Declaration 0007/2013 on the threat of drug-resistant tuberculosis to the European region. A sample letter will be available in many EU languages. If want to contact your MEPs, send us an email: fvoitzwinkler@ghadvocates.org and we’ll forward the toolkit in your language.        

We Can Heal: Drug-resistant tuberculosis in children

We Can Heal: Drug-resistant tuberculosis in children

To mark World TB Day 2013, the Sentinel Project on Paediatric Drug-Resistant Tuberculosis and Treatment Action Group released a collection of 30 stories from 30 countries that identify what the TB community needs to do to achieve zero TB deaths, new infections, and suffering. As the release states, the collection of stories illustrate the problems we collectively face with drug-resistant TB (DR-TB) in children. The stories reveal the widespread problems of prevention, diagnosis, and treatment of DR-TB while also bearing witness to the courage of the children who are fighting for their lives against DR-TB. Over the past 10 years, 40,000 cases of childhood TB were reported in the EU alone, indicating that TB in children remains a major challenge even with the European Region. A selection of the stories in the publication reflect this trend with stories from Moldova, Italy, Sweden, Belgium. All of the stories in this collection, both from within the EU and further afield, are testament to the work that remains to be done in ensuring that TB is eradicated once and for all and making sure that children across the world are able to live the carefree lives they deserve. Currently, children are going undiagnosed More…

Tuberculosis and the Media

Tuberculosis and the Media

In the past few weeks there has been a, relatively, considerable amount of column inches have been given over to tuberculosis (TB), particularly the worrying rise of multi-drug resistant TB (MDR-TB) strains. MDR-TB is a form of TB that is resistant to isoniazid and rifampicin (the two most powerful anti-TB drugs). In a recent post we highlighted articles both in the New York Times and Al-Jazeera alerting us to the concern that many developing countries with high TB prevalence are awash with fake and substandard drugs. In it’s leading story and, rightly so, featured on it’s front cover the most recent Europe edition of TIME magazine has declared “Contagion: Why drug-resistant TB threatens us all”. The article highlights that, currently, only 10 percent of new MDR cases are receiving proper treatment. Given that it also mentions there will be over 2 million new cases of MDR-TB from 2011-2015 this is something that should worry us all and spur us to take action. Importantly, a lack of proper treatment not only raises the risk of death for a TB patient, but it can also lead to the emergence of extensively drug-resistant TB (XDR-TB). This is even more difficult to treat, being More…

Jorge Sampaio says goodbye to his TB post at the UN, but who is his replacement?

Jorge Sampaio says goodbye to his TB post at the UN, but who is his replacement?

After six years as UN Secretary-General’s Special Envoy to Stop Tuberculosis, Jorge Sampaio’s time has come to an end. In a farewell message Sampaio, who only fully realised the full magnitude of TB when becoming Special Envoy, reminds world dignitaries that: ‘it is unacceptable for so many people to suffer and die from a preventable and curable disease [and] urged them to take concrete steps in the fight against tuberculosis by ensuring access to care, providing adequate funding, and empowering communities’ Significantly, Sampaio also asserts that TB must be placed high in the global post-2015 development agenda so that we can reach for the aspirational goal of zero TB deaths, zero TB disease and zero suffering.We endeavour to do all we can to make our leaders in the EU and beyond aware of the devastating impact of TB. In doing so, they should be motivated to fight against TB and ensure that they will take action and do all they can to reach zero deaths, disease and suffering. However, worryingly the UN has announced no replacement to take up Sampaio’s position as UN Special Envoy to Stop Tuberculosis. Therefore, we are calling on the UN to make an announcement with the More…

Europe’s fight with drug resistant TB – Estonia a model for success?

Europe’s fight with drug resistant TB – Estonia a model for success?

A recent article by the Wall Street Journal recently featured Estonia that by“turning the corner against drug-resistant TB offers one of the few bright spots globally as the ancient plague mutates into new and more deadly forms,” and suggested it could be a model for others. Levels of drug-resistant TB remain worryingly high in Eastern Europe, and the region continues to account for the highest proportion of multi-drug resistant TB (MDR-TB) cases in the world. In many of these countries, nearly a third of new TB cases are MDR-TB and more than half of previously treated cases have MDR-TB. Mario Raviglione, Director of the WHO’s Stop TB Department, has said, “Eastern Europe is in a disastrous situation with MDR-TB and it risks compromising anything you can do globally”. The Wall Street Journal article tells the story of Irina Nikolajeva who was diagnosed with a form of TB that was resistant to all but one of ten TB drugs: She was confined for four months in isolation, in a sparsely furnished room that resembled a prison cell and was painted a gloomy green. Yet it is the country’s unusually harsh regimen of confinement and intensive drug treatment that has helped dramatically More…

New European Committee on DR-TB appoints TB Europe Coalition as Chair

New European Committee on DR-TB appoints TB Europe Coalition as Chair

On 4 December, the first meeting of the Regional Interagency Collaborative Committee on TB care and control (RICC-TB) took place in Copenhagen. The TB Europe Coalition had been pushing for the creation of this oversight mechanism for the past few years to make sure a stronger commitment be made in the fight against drug-resistant TB in the European region.   Rates of drug-resistant TB in the European region are among the highest in the world. The region bears 20% of the global burden and gathers 18 out of the 27 high-burden DR-TB countries worldwide. DR-TB treatment success rate are higher in the Democratic Republic of Congo (50%) than in Romania (20%), which – let’s not forget – is an European Union member state. This is unacceptable. Also, in the global discussion on TB, the European region is rarely at the centre of attention. Only last month at the World Conference on Lung Health (the Union meeting in Malaysia), I didnt come across any civil society activist from the European region! TB and global health activists from Africa were quite numerous in contrast. This definitely shows a great imbalance. Time has come to act! RICC-TB is a unique platform that gathers More…

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