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TBEC Participation in the EU HIV/AIDS, Hepatitis and Tuberculosis Civil Society Forum Meeting

TBEC Participation in the EU HIV/AIDS, Hepatitis and Tuberculosis Civil Society Forum Meeting

The biannual face-to-face meeting of the EU HIV/AIDS, Hepatitis and Tuberculosis Civil Society Forum (CSF) took place on 17-18 June in Luxembourg. The forum has been established by the European Commission to facilitate the participation of European NGOs in policy development and implementation, as well as in information exchange activities. Initially established as a forum for HIV/AIDS civil society, in 2017 the EU Civil Society Forum was extended to include hepatitis and tuberculosis NGOs, which allowed TBEC to formally become a CSF member. During the meeting, CSF members, including TBEC, provided updates on their work and discussed upcoming opportunities and challenges. TBEC also facilitated several sessions focused on political advocacy towards the EU. Since the last meeting in November 2018, the EU Civil Society Forum has been involved in a variety of advocacy activities. The Advocacy and Policy Working Group, coordinated by TBEC Board member Marine Ejuryan, has particularly focused its activities on ensuring that health is prioritised in the next EU long-term budget, the Multi-annual Financial Framework (MFF), as well as making sure that health stays high on the agenda of the new EU Commission and Parliament after the EU elections in May. During the meeting, CSF members agreed More…

Vacancy Announcement - TBEC Capacity Building Manager

Vacancy Announcement – TBEC Capacity Building Manager

The Tuberculosis Europe Coalition (TBEC) is looking for an experienced Capacity Building Manager to join its international team on a part-time (up to 80%) basis, with the probability of extension to full-time employment. The TBEC Capacity Building Manager will support the capacity building of tuberculosis (TB) affected communities and civil society to be meaningfully engaged in the TB response and transition to people-centered care in the WHO Europe region, with a particular focus on the countries of Eastern Europe and Central Asia (EECA). ABOUT TBEC Established in 2009, TBEC is a regional advocacy network of civil society organisations and individuals from across the WHO Europe region, comprising Western and Eastern Europe, Caucasus and Central Asia. The network aims to strengthen the role of civil society within the regional response to TB, and ensure political and financial commitments to end TB.  Currently TBEC has more than 200 members from more than 30 countries in the region. In 2017, TBEC was registered as a legal entity in the Netherlands to step up its regional and national advocacy, capacity building and support to country-led TB advocacy initiatives. The TBEC Secretariat is responsible for the coordination, communication, administration, programmatic and policy management of the network. MAIN RESPONSIBILITIES The More…

LHL International's work in Norway

LHL International’s work in Norway

LHL International are a member of the TB Europe Coalition. In Norway, approximately 90 per cent of those who become ill come from countries with a high incidence of TB. LHL International works actively with immigrants and vulnerable groups that  for various reasons have less access to healthcare services and are at high risk of getting TB. Many have little knowledge of TB, and there is a need to spread information that is adapted to the different target groups and their needs. We do outreach information work at immigrant introduction centres, asylum centres, and meeting places for immigrant organisations. We also cooperate with immigrant organisations and health personnel in developing information particularly adapted to affected groups. Among materials developed are information booklets and films in Norwegian; English and other minority languages. You can watch one of our short information films in various languages here. One former patient who appreciated the information booklet said: “Technical people use scientific words, but other words are needed. We like information that is presented in a soft and nice way. It is important to become friend of your problem. Information is part of the treatment”. Many TB patients have a difficult time because they have recently More…

Civil Society Capacity Building for DR-TB Regional Meeting

Civil Society Capacity Building for DR-TB Regional Meeting

When new, effective medicines providing safe treatment for widespread debilitating diseases, it is vitally important to ensure that everyone who needs such medicines has access to them. It was with this aim therefore that TBEC held a regional meeting on civil society capacity building for DR-TB. Existing TB treatments are incredibly gruelling for the patient, but medical innovations (shorter or safer treatments, new medicines, or more exact methods of diagnosis) can genuinely relieve a patient’s suffering. But what use are such innovations if patients aren’t able to access them? What use are new medicines if there’s no way for hospitals to buy them or any way to prescribe that they are needed? Any measurement of the success of innovative treatments has to be countered by an assessment of their accessibility. When everyone has access to new treatments, we can start to talk about how successful they are. Guidelines on DR-TB Treatment The recent WHO recommendations on drug-resistant TB (DR-TB) are the first in a long time that provide a genuine possibility to start to improve the treatment of DR-TB by using innovative and more effective medicines with less debilitating side effects. It is therefore vital that we do not waste time; More…

‘WOLFHEZE’: What is it? What happened?

‘WOLFHEZE’: What is it? What happened?

Once every two years in May, many leading lights of TB care in the WHO Europe Region talk of going off to ‘Wolfheze’. Well, if you explore a detailed map of the Netherlands, you will find that Wolfheze itself is a tiny village in the woods on the Eastern side of the country. It is where the very first of a continuing series of meetings took place about 25 years ago. The name has stuck but the meetings since have mostly taken place in or near The Hague; this year in Scheveningen, the city’s seaside resort and suburb. The organisers are a triumvirate of KNCV, ECDC, and WHO Europe plus, on the planning committees, representatives of other parties including TBEC. The hard core of the 200 or so participants are NTP Managers but with many other interested partners. Following pressure in past years, it is now accepted that there have to be plenty of civil society people there, not just present but being among the many speakers, session co-ordinators, and reporters. In practice because of its small size, it is a relatively informal gathering of people from both low and high burden countries of the Region, and a great opportunity More…

Belarus: Key country in the fight against Multi-Drug Resistant TB

Belarus: Key country in the fight against Multi-Drug Resistant TB

In mid May, Daniel Kashnitsky and I joined with Tsira Chakaia and a Tajikistan member of parliament (MP), Jamshed Murtazaqulov, in a joint TBEC and Global TB Caucus (GTBC) visit to Belarus. Our intentions were to explore possible initiatives in Belarus under TB REP2 and also whether there is interest in creating a local MP caucus on TB. Over 3 days we had a fascinating series of meetings with parliamentarians, national health bodies, civil society, the WHO country office, and the British Embassy. The overall picture is very encouraging. Ten years ago, Belarus had some of the worst MDR rates in the world together with poor treatment success rates. Today a combination of improvements in the national programme and the introduction of new drugs, especially Bedaquiline (BDQ), have had a very positive impact. From this year onwards, BDQ is being made available in all parts of the country although there is still work to be done to ensure access to it for all. New case incidence is down from 58 in 2009 to 32 per 100 000 in 2017. Treatment success is up to an impressive 83%. Mortality is going down by around 10% per annum. New cases have dropped More…

Our future depends on humanity and good deeds

Our future depends on humanity and good deeds

A report from one of our members, the NGO ‘Towards a Future without Tuberculosis’ As in all democracies, people and their problems – both on a personal and societal level – constitute one of the main elements of a society. However, people suffering from diseases consider themselves outcasts from the rest of humanity during the course of their illness.  During the course of my work, I was able to meet with a variety of patients and learn about their medical and social problems. As a former patient myself, the idea came to me to create an NGO that would work to solve patients’ problems. The idea to create a non-governmental organisation (NGO) which would work on patients’ rights, globally and here in Azerbaijan, was always a priority. With guidance from TBEC and the support of TB-REP, as well as the invaluable advice of Elchin Mukhtarli, who answered all my questions, I established the NGO ‘Towards a Future Without Tuberculosis’, which protects patients across Azerbaijan when their rights are being undermined. I started to travel around the republic as a TB project coordinator and when meeting patients, I asked not only about the progression of their treatment but also about their More…

Apply for TBEC capacity building workshop in London!

Apply for TBEC capacity building workshop in London!

TB Europe Coalition is launching a call for applications for a three-day TBEC capacity building workshop on TB advocacy and service delivery that will take place in London, from the 16th to the 18th September 2019. The three-day workshop will focus on: TB research and advocacy in the UK (from engagement with government officials and members of the UK parliament to working closely with academic networks and international organisations); Organisational capacity building of TBEC members (from best practice in awareness raising and health promotion among affected communities to practical experience in grassroots engagement to fundraising strategies to successful campaigning); TB service delivery (including visiting the Find&Treat van and Olallo House in London); TBEC will cover all travel, accommodation and per diems for THREE participants. As this workshop aims to use the acquired information in your day-to-day work, all the participants will be asked to develop and implement a small project/activity set in their home country, following the training. Thus, in your application form, you will be asked to provide an outline for such a project. The form of the activity can vary from the development of organisations advocacy or grassroots engagement strategy to creation of local advocates group to the More…

In Tajikistan, Nurses Fill the Gap in Tuberculosis Care

In Tajikistan, Nurses Fill the Gap in Tuberculosis Care

All over the world, nurses are on the front lines of patient care and support, often filling critical gaps in care in remote, rural areas where doctors are in short supply.  Tajikistan is no exception. Gulmira Abduqodirova, a nurse in the Lyakhsh district in northeast Tajikistan has spent more than 20 years traveling regularly to the most remote corners of her district to make sure residents receive the care they need. “Working hand-in-hand with community health committees brings TB care closer to residents, helps us find and refer people with potential TB symptoms for testing, and supports patients so they complete their TB treatment. Thanks to these joint efforts, TB mortality in our district has dropped to zero.” – Gulmira Abduqodirova The Lyakhsh district’s half dozen villages span some of the most treacherous terrain in Tajikistan. In 2015, when a major avalanche blocked all roads for three weeks, Abduqodirova became the only healthcare provider in her village for patients with tuberculosis (TB), who require daily medication and support.  Committed to providing every patient with the best medical care, this sprightly grandmother of nine frequently traveled on foot for days to neighboring communities to see patients and counsel their families. Recognizing Abduqodirova’s More…

TBEC requests proposals for provision of consultancy services to conduct coaching/needs assessment visit to Republic of Kyrgyzstan and to Republic of Armenia within TB-REP 2.0 project

TBEC requests proposals for provision of consultancy services to conduct coaching/needs assessment visit to Republic of Kyrgyzstan and to Republic of Armenia within TB-REP 2.0 project

TB Europe Coalition invites International Organizations providing consultancy services to indicate their interest to conduct coaching/needs assessment visit to Republic of Kyrgyzstan and to Republic of Armenia in the framework of the implementation of the current tasks of the Global Fund Multi-Country Program “Advancing People-Centered Quality TB Care –From the New Model of Care Towards Improving DR-TB Early Detection and Treatment Outcomes” (TB-REP 2.0).  Detailed information is provided in the Requests of the Expression of Interest and Terms of References. The Organization may apply for the provision of services in one country or in both of them. If Organization applies for two countries – two separate sets of documents expressing the interest should be submitted. The deadline for this has passed. 3_REI_CQ_Coaching_Visits_Armenia 3_REI_CQ_Coaching_Visits_Kyrgyzstan 3_ToR_CQ_Coaching_Visits_Armenia 3_ToR_CQ_Coaching_Visits_Kyrgyzstan       This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not More…

A new project on the prevention and treatment of TB among children and adolescents in Atyrau

A new project on the prevention and treatment of TB among children and adolescents in Atyrau

During the round table organized on April 26, in the city of Atyrau, a new project “Introduction of highly effective measures on prevention and treatment of tuberculosis among children and adolescents of Atyrau” was presented. The goal of the project is to improve the organization of TB prevention measures among adolescents and children. The project is being implemented by the international organization Project HOPE Kazakhstan within the framework of the Social Investment Program Tengizchevroil LLP and in collaboration with the National Scientific Center for Phthisiopneumology of the Ministry of Health of the Republic of Kazakhstan. The event was attended by representatives of the National Scientific Center for Phthisiopneumology, Project HOPE Kazakhstan, Tengizchevroil LLP, akimat (regional executive body) of Atyrau region, employees of the health care and education system. During the meeting, the situation with tuberculosis among children and adolescents in Kazakhstan and in the Atyrau region was presented. In particular, it was noted that the incidence of tuberculosis among children (0-14 years old) and adolescents (15-17 years old) is much higher in the city of Atyrau than the national average: among adolescents and children, the incidence of tuberculosis in 2017 is 1.5 times higher than the national average. Presenting the More…

CfP: Consultants to develop a framework for the roadmap on cooperation between National TB programs, health providers and civil society in the EECA region (TB-REP2.0)

CfP: Consultants to develop a framework for the roadmap on cooperation between National TB programs, health providers and civil society in the EECA region (TB-REP2.0)

TBEC announce a call for individual consultants to develop framework for the roadmap on cooperation between National TB programs, health providers and civil society in the EECA region within TB-REP2.0 project TB Europe Coalition invites individual consultants to indicate their interest to develop framework for the roadmap on cooperation between National TB programs, health providers and civil society in the EECA region in the framework of the implementation of the current tasks of the Global Fund Multi-Country Program “Advancing People-Centered Quality TB Care – From the New Model of Care Towards Improving DR-TB Early Detection and Treatment Outcomes” (TB-REP 2.0). The consultant would be expected to: Develop the framework roadmap to be applied in specific countries of the EECA region. The framework roadmap should be informed by the epidemiological, political situation of the East Europe and Central Asia region and be in line with existing recommendations for the region such as of WHO and Stop TB Partnership. Develop the template of the MoU or joint statement between NTPs and civil society. More detailed information is provided in the Request for Expression of Interest and Terms of Reference. Deadlines for this have now closed. This webpage is the product of an activity that More…

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