Civil society organizations and communities affected by TB need a relevant and strong evidence base for successful advocacy.
With this in mind, the Stop TB Partnership developed a special assessment tool “OneImpact” (https://stoptbpartnershiponeimpact.org), which allows to collect real-time data on barriers to TB diagnostics and treatment, track the quality of TB interventions and respond in a timely manner to emerging problems and complication.
This digital solution in the form of a smartphone application is effectively used in ten countries of the world, including four countries of the EECA region, one of which is Ukraine, thanks to the TB-REP 2.0 project supported by PAS Centre.
“Thanks to the OneImpact application in Ukraine, in 2020 alone, more than a thousand people with tuberculosis were able to receive support, assistance, and maintenance in overcoming the barriers they faced. This helps a lot to maintain adherence to treatment, because every person affected by the problem of tuberculosis may face some difficulties. And in this case, he should be able to communicate his needs or concerns.” – says Olya Klymenko, Chair of the Board of TBPeople Ukraine and Head of the Steering Committee of the “Stop TB Partnership. Ukraine”. “To make this possible, we did a lot of preparatory work before launching the application. First, we needed to raise awareness among people with tuberculosis about their rights. Secondly, we trained and convinced physicians that with OneImpact we plan to build evidence for positive systemic change, not complaints. We also established an effective partnership with the responsible state authority, the Centre for Public Health of the Ministry of Health of Ukraine, which supported our initiative and contributed to the fact that local medical institutions became more open to cooperation regarding the use of OneImpact. In addition, we have combined our efforts to quickly respond to information coming through the application about the problems of people with tuberculosis. Such achievements are, of course, the result of teamwork, and we thank all partners for their interaction.”
Typically, a human rights-based monitoring system at the community level is implemented in countries in collaboration with several stakeholders, including the National Tuberculosis Program, health care providers and health workers, civil society representatives and people affected by TB. Its implementation consists of 6 main stages and subsequent steps:
The first stage is an assessment of needs and opportunities,
The second stage is the adaptation of the digital platform “OneImpact” and the development of a technical solution acceptable for each country (the monitoring application can be easily adapted and downloaded from Google Play),
The third stage is user training (usually in several stages, starting with the training of trainers who will train healthcare workers and people affected by TB),
The fourth stage is the direct launch of the OneImpact application in the country,
The fifth stage is continuous real-time data collection and community consulting support,
The sixth stage is evaluation and scaling.
This community-based monitoring is a quick way to improve the availability, acceptability and quality of TB services using the data collected. The analysed data is helping the community affected by TB, in collaboration with government authorities, to improve access to TB services, to remove human rights and gender barriers on the way to prevention, treatment and care faster, and to make better use of financial resources. Continuous monitoring contributes to the timely and convincing communication of decision-makers and stakeholders about the obstacles associated with the observance of human rights (availability, accessibility, acceptability, quality and equity of services), which can subsequently contribute to policy reform and improve decision-making in the field of TB response.
It is important to note that the Global Fund to Fight AIDS, Tuberculosis and Malaria invites countries to expand community monitoring and include it in their grant proposals to improve the quality and efficiency of investments in TB services and link it to national monitoring systems. It is advocacy based on real data collected during monitoring that should be the result of the implementation of the OneImpact tool. However, communities affected by TB are free to decide what to track and how to track it in their country. Detailed guidance on community monitoring is available on the Stop TB Partnership website:
A brochure will also be published shortly for civil society organizations and communities affected by TB on the practical use of the Stop TB Partnership’s core assessment tools, including community-level monitoring of the TB response using the digital platform OneImpact. The material is being prepared for publication by the TB Europe Coalition within the framework of the Strategic Initiative “Communities, Rights and Gender – meaningful engagement and capacity development of key and vulnerable populations”.