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Book Review – ‘Peace inside me: Confessions of a TB girl, a biographical novel’

Book Review – ‘Peace inside me: Confessions of a TB girl, a biographical novel’

In 2016, Olya Klymenko released her biographical novel ‘Peace inside me: confessions of a girl with TB, a biographical novel’, which describes her experience with TB and the bitter stigma associated with this disease. Today Olya is the chair of the organisation TB People Ukraine and a Board Member for TBEC. You can order the book directly from the author by email at Olyaklymenko2910@gmail.com, by Viber +380676850140 or by Messenger https://www.facebook.com/messages/t/Olga.Klimenko29. Olya donates the proceeds from sales to support TB treatment and families in difficulty. Any one person is capable of doing a good deed. This is not a real review. It is instead a response to a book that left its impression in my heart. The book fascinated me from the first pages with its sincere and straightforward story about the author’s difficult childhood and adolescence. When Olya was a young child, her mother became seriously ill and soon died, leaving Olya with many painful memories. Her relationship with her father was fraught and she grew up too fast, having to survive against the background of poverty and social insecurity so familiar to any post-Soviet reader. From the age of 14, she worked, left home, became homeless, lived in More…

Prevention and treatment of TB among children in Atyrau, Kazakhstan

Prevention and treatment of TB among children in Atyrau, Kazakhstan

This week we have a blog from our member, Project Hope, on the interim results of their project on the Implementation of Highly Effective Measures of Prevention and Treatment of TB among Children and Adolescents in Atyrau, Kazakhstan, which were presented at a round table organised on the 1st November in Almaty. The project launched in March this year to improve the organization of TB prevention measures among adolescents and children in Atyrau. It is being implemented by the international organization Project HOPE-Kazakhstan within the framework of the Social Investment Program of Tengizchevroil LLP and in cooperation with the National Research Center of Phthisiopulmonology of the Ministry of Health of the Republic of Kazakhstan. The representatives of organizations involved in the project – the N ational Research Center of Phthisiopulmonology, Tengizchevroil LLP, educational and health institutions, as well as the representatives of the Project HOPE and other international organizations attended the roundtable event. During the course of the event, information on the epidemiological situation with TB among children and adolescents in the Republic of Kazakhstan and in the Atyrau region, as well as the results of the project were presented. In particular, it was noted that over the past 10 years, More…

TBEC Coaching Visit in Azerbaijan

TBEC Coaching Visit in Azerbaijan

From the 12th-15th November, TBEC Capacity Building Manager Marichka Makovetska and TBEC Board Chair Paul Sommerfeld attended a three-day coaching visit in Azerbaijan as part of the TB-REP 2.0 project. The visit aimed to understand the overall context of the TB response in the country, with a specific focus on the capacity building needs of civil society organisations (CSOs) involved in TB care. During the first day, TBEC’s civil society partner “Saglamliga Khidmat” Public Union organised a meeting with a variety of interested civil society organisations. The partners discussed priorities and barriers regarding access to people-centred TB care in the country and discussed the idea of the organization of a National TB Dialogue in the Republic of Azerbaijan. The partners discussed the focus on people-centred TB care as a part of the response to tuberculosis and the need for community services to ensure successful treatments outcomes. Civil society members present at the meeting mentioned that there are some positive examples of cooperation between state agencies and CSOs in the area of information and education projects on TB. Unfortunately, social support projects on TB are still implemented through Global Fund financing. It is, therefore, necessary to understand how, going forward, civil society More…

Southern and East Europe Regional HIV and TB Community (SEE RCN)

Southern and East Europe Regional HIV and TB Community (SEE RCN)

Over the last few months, some of TBEC’s partners have been forming the Southern and East Europe Regional HIV and TB Community (SEE RCN). The formal launch for the network and its first meeting were held in In Podgorica, Montenegro in September 2019. The SEE RCN is been established in response to growing challenges facing countries in the region regarding the situation post-transition from the support of Global Fund to Fight AIDS, Tuberculosis and Malaria in numerous countries of this region.  For example, there are very significant challenges in Bosnia and Herzegovina in terms of the response to HIV, which is currently characterized by the nearly complete absence of the HIV prevention services for the Key Affected Populations, including the on-site testing of the KAPs, harm reduction services, support to PLHIV, etc.  Romania, Bulgaria, Albania are also facing some of these challenges and other countries may experience similar challenges in the future. The Southern and East Europe Regional HIV and TB Community (SEE RCN) network brings together leading CSO partners, PLHIV and PLTB from 11 countries. Its first meeting was supported or attended by numerous international partners, including WHO, UNAIDS, TB Europe Coalition, Global TB Caucus, Stop TB partnership, etc.  More…

TBEC Coaching Visit in Armenia

TBEC Coaching Visit in Armenia

 From the 24th – 26th September, a team of TB REP 2.0 project partners, representing TBEC and PAS Center took part in a three-day coaching visit to the Republic of Armenia. The visit objective was to get acquainted with the overall context of the TB response in the country, with a specific focus on the capacity building needs of civil society organisations involved in TB care. To address such needs, a National Dialogue is planned in the future – to promote cooperation between NTP, other TB stakeholders, and civil society in advancing a people-centred approach to TB care. Further details regarding the National Dialogue will be made available on the TBEC website calendar. The coaching visit’s agenda included meetings with NTP, WHO CO, civil society organisations, organisations from affected communities, and Members of Parliament. There are a number of positive signs regarding the response to TB in Armenia and the country has demonstrated particularly strong leadership in facilitating the timely introduction of new WHO DR-TB treatment guidelines. Within the remit of this change, Armenia is also transitioning to an entirely oral-treatment regime, rather than injectables. This is a great success; TBEC have been highlighting the need to provide TB patients with More…

JOB: Apply to be TBEC Officer (Maternity Cover)

JOB: Apply to be TBEC Officer (Maternity Cover)

The TB Europe Coalition is delighted to announce a vacancy for the role of TBEC Officer (Maternity Cover).  The Officer will be responsible for the communication, advocacy and capacity-building of TBEC members and represent the TBEC Secretariat in London. They are the primary liaison with members and are responsible for the management of the Coalition membership. The role, alongside TBEC’s other Secretariat staff, will be responsible for leading the delivery of TBEC’s communication strategy, TBEC advocacy and research, and capacity building activities, ranging from online webinars to country-based workshops. The person will also manage the engagement and outreach towards TBEC members and support the management of the EC grant where necessary. The deadline for this has now passed. This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may More…

Estonian Network of People Living with HIV International Summer Camp

Estonian Network of People Living with HIV International Summer Camp

Today we have a blog from our member organization, the Estonian Network of People Living with HIV. The network has been organizing an annual International Summer Camp for activists, volunteers, and PLHIV community leaders since 2005. This year, they held the XV International Summer camp in Narva-Jõesuu, Estonia, from the 9th to 12th September. Narva-Jõesuu is a town in Ida-Viru County, in north-eastern Estonia, a very beautiful and popular place thanks to its eight-kilometer-long white sand beach lined with pine trees. During the camp, participants get to know more about advocacy, what key skills are necessary to begin the implementation of advocacy as a separate direction of activity, and learn about unique advocacy problems in the fields of HIV/AIDS, TB, and Hepatitis C. The main goal of the International Summer Camp is to promote the development of leadership among PLHIV in Estonia and its neighbouring countries. The camp creates conditions for stable communication and mutual support between the participants and other representatives of the community and volunteers concerning the preparation and implementation of advocacy campaigns and events. It also defines the basic provisions for the advocacy action manual. The camp consists of five days training: presentations, warm-ups, discussions, brainstorming, working More…

TB Advocacy in the Netherlands

TB Advocacy in the Netherlands

In September 2019, to mark a year since the UN High-Level Meeting on TB, Serhii Kiral, Co-Chair of the Eurasian Parliamentary Group on TB, Alesia Matusevych & Kate Thompson, TBEC members and members of the Global TB Caucus Secretariat, travelled to the Netherlands for a joint delegation with KNCV. The visit aimed to facilitate engagement between Caucus members within the European region, particularly Anne Kuik, Dutch TB Champion, and help to ensure sustainable parliamentary engagement in the Netherlands on this topic. On Thursday the delegation travelled to Rotterdam to participate in the World of Health Care (WOHC) event. The WOHC event was organised by a coalition of Dutch civil society to highlight the role of international collaboration in achieving SDG 3, which aims to ensure healthy lives and promote wellbeing for all at all ages. Upon arrival the Caucus delegation decided to take part in an interactive discussion about how to resolve various public healthcare scenarios in Malaysia and Kenya. Our topic was Antimicrobial Resistance in Malaysia, allowing Serhii Kiral to draw upon his experiences as the Special Rapporteur on Multi-Drug Resistant TB in Europe for the Parliamentary Assembly of the Council of Europe. Serhii Kiral was also invited to More…

TBEC announce a call for Individual Entrepreneurs to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.)  within TB-REP2.0 project

TBEC announce a call for Individual Entrepreneurs to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.) within TB-REP2.0 project

TB Europe Coalition invites Individual Entrepreneurs to indicate their interest to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.) needed in the framework of the implementation of the current tasks of the Global Fund Multi-Country Program “Advancing People-Centered Quality TB Care – From the New Model of Care Towards Improving DR-TB Early Detection and Treatment Outcomes” (TB-REP 2.0). Detailed information is provided in the Request of the Expression of Interest and Terms of References. The deadline for this has passed. This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

TBEC at the EU Health Programme High-Level Conference in Brussels

TBEC at the EU Health Programme High-Level Conference in Brussels

Last Monday, TBEC Secretariat team attended the EU Health Programme High-Level Conference in Brussels. The conference brought together various EU officials and policymakers, researchers, representatives of the national public health institutes and intergovernmental organisations and civil society organisations, and networks. Organised by the Consumers, Health, Agriculture and Food Executive Agency, the conference focused on key achievements and “success stories” around each one of the four objectives of the 3rd Health Programme. TBEC team from London showcased TBEC activities within the framework of EU Health programme grant at the conference’s NGO stand and discussed the TB advocacy and people-centred care issues with various civil society organisations and representatives of national public health institutes. Unfortunately, during the conference, TBEC learned about the European Commission’s plans to close the EU Civil Society Forum on HIV, TB and Viral Hepatitis. The EU CSF on HIV, TB and viral hepatitis is an informal advisory body established by the European Commission, aiming to facilitate the involvement of civil society in policy and programme-making. It has been a unique example of cooperation between civil society organisations and EU institutions in health policy. Both EU institutions and other civil society networks have often referred to the EU CSF More…

TBEC welcomes Paul Sommerfeld as new Board Chair

TBEC welcomes Paul Sommerfeld as new Board Chair

On 27th September, Paul Sommerfeld has been voted in as new Board Chair of the TB Europe Coalition. Jonathan Stillo steps in as his Co-Chair while Marine Ejuryan and Stefan Radut are filling the roles of Vice-Chairs. The four of them form the new Executive Committee of the TB Europe Coalition. The move happened when Fanny Voitzwinkler decided to step down as Chair of the TB Europe Coalition. “I am very grateful to have been part of the creation and growth of the TB Europe Coalition in the past decade. We have achieved so much and now have a very skilled and strong structure in place. As I am reorienting myself out of the NGO world, I feel it is time to step down as Chair of the TB Europe Coalition.” says Fanny. The Board thanked her for her commitment and leadership throughout the years and wishes her the best in her new endeavours. This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of More…

Michael Kazatchkine meets civil society representatives in Azerbaijan

Michael Kazatchkine meets civil society representatives in Azerbaijan

Professor Michael Kazatchkine, special advisor to the Joint Programme on HIV/AIDS (UNAIDS) in Eastern Europe and Central Asia and the former Executive Director of the Global Fund to Azerbaijan, made an official visit to Azerbaijan between the 30 September and 3 October 2019. During his visit to Baku, Professor Kazatchkine had already met with the head of State Agency on Mandatory Health Insurance and planned to meet with the Ministry of Health, deputy of the Ministry of Social Affairs, deputies of the Prime Minister who responsible for Sustainable Development, Parliamentarians from the Health Committee and head of Main Medical Department of the Ministry of Justice. Together with colleagues from state authorities and CSO, he planned to discuss TB advocacy issues, HIV/AIDS and viral Hepatitis response of the country to increase government commitments while reaching UN 2030 Agenda. As a strong advocate for the civil society involvement in TB and HIV/AIDS response, on October 1, Professor Kazatchkine also met with TB Azerbaijan NGO Coalition and the NGOs who work in HIV/AIDS projects under the support of the Global Fund. Partners discussed CSOs’ efforts and advocacy activities for sustainable TB and HIV response in the context of the transition processes from the More…

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