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Discussing TB and Human Rights in East Europe and Central Asia

Discussing TB and Human Rights in East Europe and Central Asia

Date: 22-23 November, Kyiv, Ukraine Meeting venue: Hotel Rus, Kyiv On November 22-23 TBEC organized a Community Rights and Gender Regional Workshop on TB and Human Rights. This was a regional event for TB community activists and CSO leaders from Eastern Europe and Central Asia. TBEC provided a resource platform for this workshop, joining efforts with co-organizing partners – the Alliance for Public Health and STOP TB Partnership. TB People also joined as a technical partner. The workshop was conducted within the auspices of the Community, Rights and Gender Strategic Initiative of the Global Fund for HIV/AIDS, TB and Malaria. It empowered participants to understand and activate a human right-based response to TB in their countries and communities and equip them with tools to address human rights-related barriers to TB services and protect the human rights of people affected by TB, including key and vulnerable populations. It is acknowledged by an increasing number of stakeholders that reducing legal barriers is the most effective measure to end tuberculosis today. The key question of the workshop was why a human rights-based approach is necessary for a successful TB response: what framework is provided by international documents to conceptualize rights of people affected by TB, including More…

TBEC 2019 Annual Board Meeting and 2019 Summary

TBEC 2019 Annual Board Meeting and 2019 Summary

Members of the TBEC Board met in Kyiv on the 21st November in Kyiv for our annual face-to-face meeting. Over the last few years, TBEC has grown exponentially and its reach has extended, however, its sustainability very much depends on donor funding. The annual board meeting allows the organisation to reflect on the year, to identify any upcoming challenges, and to plan for the upcoming period. Ten board members, six members of the Secretariat, and the Chair of the Oversight Advisory Committee (OAC) were all in attendance. The meeting lasted for one day and was divided into five sessions: summary of achievements in 2019 and ways forward; member needs and member engagement; board and OAC engagement; TBEC finances; and TBEC visibility, communications strategy and campaigning approach for 2020. Overall, we are very pleased with our achievements in 2019, which vary from the technical and organisational, to programmatic expertise and international policy change. TBEC’s profile has been raised to new heights through our presence at and organisation of a number of global, regional, and in-country events. Four in-country coaching visits and/or meetings were organised this year (in Armenia, Azerbaijan, Belarus and Bulgaria) as well as four regional meetings (one in the More…

Book Review – ‘Peace inside me: Confessions of a TB girl, a biographical novel’

Book Review – ‘Peace inside me: Confessions of a TB girl, a biographical novel’

In 2016, Olya Klymenko released her biographical novel ‘Peace inside me: confessions of a girl with TB, a biographical novel’, which describes her experience with TB and the bitter stigma associated with this disease. Today Olya is the chair of the organisation TB People Ukraine and a Board Member for TBEC. You can order the book directly from the author by email at Olyaklymenko2910@gmail.com, by Viber +380676850140 or by Messenger https://www.facebook.com/messages/t/Olga.Klimenko29. Olya donates the proceeds from sales to support TB treatment and families in difficulty. Any one person is capable of doing a good deed. This is not a real review. It is instead a response to a book that left its impression in my heart. The book fascinated me from the first pages with its sincere and straightforward story about the author’s difficult childhood and adolescence. When Olya was a young child, her mother became seriously ill and soon died, leaving Olya with many painful memories. Her relationship with her father was fraught and she grew up too fast, having to survive against the background of poverty and social insecurity so familiar to any post-Soviet reader. From the age of 14, she worked, left home, became homeless, lived in More…

Prevention and treatment of TB among children in Atyrau, Kazakhstan

Prevention and treatment of TB among children in Atyrau, Kazakhstan

This week we have a blog from our member, Project Hope, on the interim results of their project on the Implementation of Highly Effective Measures of Prevention and Treatment of TB among Children and Adolescents in Atyrau, Kazakhstan, which were presented at a round table organised on the 1st November in Almaty. The project launched in March this year to improve the organization of TB prevention measures among adolescents and children in Atyrau. It is being implemented by the international organization Project HOPE-Kazakhstan within the framework of the Social Investment Program of Tengizchevroil LLP and in cooperation with the National Research Center of Phthisiopulmonology of the Ministry of Health of the Republic of Kazakhstan. The representatives of organizations involved in the project – the N ational Research Center of Phthisiopulmonology, Tengizchevroil LLP, educational and health institutions, as well as the representatives of the Project HOPE and other international organizations attended the roundtable event. During the course of the event, information on the epidemiological situation with TB among children and adolescents in the Republic of Kazakhstan and in the Atyrau region, as well as the results of the project were presented. In particular, it was noted that over the past 10 years, More…

TBEC Coaching Visit in Azerbaijan

TBEC Coaching Visit in Azerbaijan

From the 12th-15th November, TBEC Capacity Building Manager Marichka Makovetska and TBEC Board Chair Paul Sommerfeld attended a three-day coaching visit in Azerbaijan as part of the TB-REP 2.0 project. The visit aimed to understand the overall context of the TB response in the country, with a specific focus on the capacity building needs of civil society organisations (CSOs) involved in TB care. During the first day, TBEC’s civil society partner “Saglamliga Khidmat” Public Union organised a meeting with a variety of interested civil society organisations. The partners discussed priorities and barriers regarding access to people-centred TB care in the country and discussed the idea of the organization of a National TB Dialogue in the Republic of Azerbaijan. The partners discussed the focus on people-centred TB care as a part of the response to tuberculosis and the need for community services to ensure successful treatments outcomes. Civil society members present at the meeting mentioned that there are some positive examples of cooperation between state agencies and CSOs in the area of information and education projects on TB. Unfortunately, social support projects on TB are still implemented through Global Fund financing. It is, therefore, necessary to understand how, going forward, civil society More…

Southern and East Europe Regional HIV and TB Community (SEE RCN)

Southern and East Europe Regional HIV and TB Community (SEE RCN)

Over the last few months, some of TBEC’s partners have been forming the Southern and East Europe Regional HIV and TB Community (SEE RCN). The formal launch for the network and its first meeting were held in In Podgorica, Montenegro in September 2019. The SEE RCN is been established in response to growing challenges facing countries in the region regarding the situation post-transition from the support of Global Fund to Fight AIDS, Tuberculosis and Malaria in numerous countries of this region.  For example, there are very significant challenges in Bosnia and Herzegovina in terms of the response to HIV, which is currently characterized by the nearly complete absence of the HIV prevention services for the Key Affected Populations, including the on-site testing of the KAPs, harm reduction services, support to PLHIV, etc.  Romania, Bulgaria, Albania are also facing some of these challenges and other countries may experience similar challenges in the future. The Southern and East Europe Regional HIV and TB Community (SEE RCN) network brings together leading CSO partners, PLHIV and PLTB from 11 countries. Its first meeting was supported or attended by numerous international partners, including WHO, UNAIDS, TB Europe Coalition, Global TB Caucus, Stop TB partnership, etc.  More…

TBEC Coaching Visit in Armenia

TBEC Coaching Visit in Armenia

 From the 24th – 26th September, a team of TB REP 2.0 project partners, representing TBEC and PAS Center took part in a three-day coaching visit to the Republic of Armenia. The visit objective was to get acquainted with the overall context of the TB response in the country, with a specific focus on the capacity building needs of civil society organisations involved in TB care. To address such needs, a National Dialogue is planned in the future – to promote cooperation between NTP, other TB stakeholders, and civil society in advancing a people-centred approach to TB care. Further details regarding the National Dialogue will be made available on the TBEC website calendar. The coaching visit’s agenda included meetings with NTP, WHO CO, civil society organisations, organisations from affected communities, and Members of Parliament. There are a number of positive signs regarding the response to TB in Armenia and the country has demonstrated particularly strong leadership in facilitating the timely introduction of new WHO DR-TB treatment guidelines. Within the remit of this change, Armenia is also transitioning to an entirely oral-treatment regime, rather than injectables. This is a great success; TBEC have been highlighting the need to provide TB patients with More…

JOB: Apply to be TBEC Officer (Maternity Cover)

JOB: Apply to be TBEC Officer (Maternity Cover)

The TB Europe Coalition is delighted to announce a vacancy for the role of TBEC Officer (Maternity Cover).  The Officer will be responsible for the communication, advocacy and capacity-building of TBEC members and represent the TBEC Secretariat in London. They are the primary liaison with members and are responsible for the management of the Coalition membership. The role, alongside TBEC’s other Secretariat staff, will be responsible for leading the delivery of TBEC’s communication strategy, TBEC advocacy and research, and capacity building activities, ranging from online webinars to country-based workshops. The person will also manage the engagement and outreach towards TBEC members and support the management of the EC grant where necessary. The deadline for this has now passed. This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may More…

Estonian Network of People Living with HIV International Summer Camp

Estonian Network of People Living with HIV International Summer Camp

Today we have a blog from our member organization, the Estonian Network of People Living with HIV. The network has been organizing an annual International Summer Camp for activists, volunteers, and PLHIV community leaders since 2005. This year, they held the XV International Summer camp in Narva-Jõesuu, Estonia, from the 9th to 12th September. Narva-Jõesuu is a town in Ida-Viru County, in north-eastern Estonia, a very beautiful and popular place thanks to its eight-kilometer-long white sand beach lined with pine trees. During the camp, participants get to know more about advocacy, what key skills are necessary to begin the implementation of advocacy as a separate direction of activity, and learn about unique advocacy problems in the fields of HIV/AIDS, TB, and Hepatitis C. The main goal of the International Summer Camp is to promote the development of leadership among PLHIV in Estonia and its neighbouring countries. The camp creates conditions for stable communication and mutual support between the participants and other representatives of the community and volunteers concerning the preparation and implementation of advocacy campaigns and events. It also defines the basic provisions for the advocacy action manual. The camp consists of five days training: presentations, warm-ups, discussions, brainstorming, working More…

TB Advocacy in the Netherlands

TB Advocacy in the Netherlands

In September 2019, to mark a year since the UN High-Level Meeting on TB, Serhii Kiral, Co-Chair of the Eurasian Parliamentary Group on TB, Alesia Matusevych & Kate Thompson, TBEC members and members of the Global TB Caucus Secretariat, travelled to the Netherlands for a joint delegation with KNCV. The visit aimed to facilitate engagement between Caucus members within the European region, particularly Anne Kuik, Dutch TB Champion, and help to ensure sustainable parliamentary engagement in the Netherlands on this topic. On Thursday the delegation travelled to Rotterdam to participate in the World of Health Care (WOHC) event. The WOHC event was organised by a coalition of Dutch civil society to highlight the role of international collaboration in achieving SDG 3, which aims to ensure healthy lives and promote wellbeing for all at all ages. Upon arrival the Caucus delegation decided to take part in an interactive discussion about how to resolve various public healthcare scenarios in Malaysia and Kenya. Our topic was Antimicrobial Resistance in Malaysia, allowing Serhii Kiral to draw upon his experiences as the Special Rapporteur on Multi-Drug Resistant TB in Europe for the Parliamentary Assembly of the Council of Europe. Serhii Kiral was also invited to More…

TBEC announce a call for Individual Entrepreneurs to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.)  within TB-REP2.0 project

TBEC announce a call for Individual Entrepreneurs to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.) within TB-REP2.0 project

TB Europe Coalition invites Individual Entrepreneurs to indicate their interest to provide logistical and administrative support in the organization of a series of national and international events (trainings, workshops, conferences, etc.) needed in the framework of the implementation of the current tasks of the Global Fund Multi-Country Program “Advancing People-Centered Quality TB Care – From the New Model of Care Towards Improving DR-TB Early Detection and Treatment Outcomes” (TB-REP 2.0). Detailed information is provided in the Request of the Expression of Interest and Terms of References. The deadline for this has passed. This webpage is the product of an activity that has received funding under an operating grant from the European Union’s Health Programme (2014-2020). The content of this webpage represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

TBEC at the EU Health Programme High-Level Conference in Brussels

TBEC at the EU Health Programme High-Level Conference in Brussels

Last Monday, TBEC Secretariat team attended the EU Health Programme High-Level Conference in Brussels. The conference brought together various EU officials and policymakers, researchers, representatives of the national public health institutes and intergovernmental organisations and civil society organisations, and networks. Organised by the Consumers, Health, Agriculture and Food Executive Agency, the conference focused on key achievements and “success stories” around each one of the four objectives of the 3rd Health Programme. TBEC team from London showcased TBEC activities within the framework of EU Health programme grant at the conference’s NGO stand and discussed the TB advocacy and people-centred care issues with various civil society organisations and representatives of national public health institutes. Unfortunately, during the conference, TBEC learned about the European Commission’s plans to close the EU Civil Society Forum on HIV, TB and Viral Hepatitis. The EU CSF on HIV, TB and viral hepatitis is an informal advisory body established by the European Commission, aiming to facilitate the involvement of civil society in policy and programme-making. It has been a unique example of cooperation between civil society organisations and EU institutions in health policy. Both EU institutions and other civil society networks have often referred to the EU CSF More…

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