Close it

Would you like to become a TBEC member? Please fill out the form below.

By becoming a TBEC member, you agree to endorse the values and the principles of the TB Europe Coalition, and agree with its membership rights and responsibilities.

Membership is free of charge.

TBEC membership rights

TBEC membership responsibilities












Case Studies
National Dialogue in Belarus - Collaborative Plan of Action to End TB

National Dialogue in Belarus – Collaborative Plan of Action to End TB

On the 6th and 7th August, TBEC ran the first National Dialogue for the Development of Partner Cooperation to End TB in Belarus. What does this long title actually mean? And what actually happened during the course of these two days in Minsk? During the two days, the 45 participants discussed how to organise people centred TB care in cooperation between civil society and how to introduce mechanisms for social contracting of TB care. The participants included: experts, key decision makers, people living with TB, representatives of civil society, two deputies from the Belorussian national assembly, three directors from state-level health departments, head of TB services, international experts, and journalists. The event was organised under the auspices of the regional TB Rep 2.0 programme. However, the thing that truly differentiated this from other events was that people living with TB participated on equal grounds with doctors and healthcare organisers. We would even go as far as to say that genuine dialogue took place – almost everyone who needed to be there was able to participate. What was discussed at the National Dialogue? One of the key questions during the meeting was regarding the development of cooperation between TB services and societal organisations in More…

LHL International's work in Norway

LHL International’s work in Norway

LHL International are a member of the TB Europe Coalition. In Norway, approximately 90 per cent of those who become ill come from countries with a high incidence of TB. LHL International works actively with immigrants and vulnerable groups that  for various reasons have less access to healthcare services and are at high risk of getting TB. Many have little knowledge of TB, and there is a need to spread information that is adapted to the different target groups and their needs. We do outreach information work at immigrant introduction centres, asylum centres, and meeting places for immigrant organisations. We also cooperate with immigrant organisations and health personnel in developing information particularly adapted to affected groups. Among materials developed are information booklets and films in Norwegian; English and other minority languages. You can watch one of our short information films in various languages here. One former patient who appreciated the information booklet said: “Technical people use scientific words, but other words are needed. We like information that is presented in a soft and nice way. It is important to become friend of your problem. Information is part of the treatment”. Many TB patients have a difficult time because they have recently More…

Our future depends on humanity and good deeds

Our future depends on humanity and good deeds

A report from one of our members, the NGO ‘Towards a Future without Tuberculosis’ As in all democracies, people and their problems – both on a personal and societal level – constitute one of the main elements of a society. However, people suffering from diseases consider themselves outcasts from the rest of humanity during the course of their illness.  During the course of my work, I was able to meet with a variety of patients and learn about their medical and social problems. As a former patient myself, the idea came to me to create an NGO that would work to solve patients’ problems. The idea to create a non-governmental organisation (NGO) which would work on patients’ rights, globally and here in Azerbaijan, was always a priority. With guidance from TBEC and the support of TB-REP, as well as the invaluable advice of Elchin Mukhtarli, who answered all my questions, I established the NGO ‘Towards a Future Without Tuberculosis’, which protects patients across Azerbaijan when their rights are being undermined. I started to travel around the republic as a TB project coordinator and when meeting patients, I asked not only about the progression of their treatment but also about their More…

Find and Support - Interview with Daniel Kashnitsky

Find and Support – Interview with Daniel Kashnitsky

This interview first appeared in the March 2019 edition of the “Don’t Fly Away” magazine, Odessa Way Home Charity Fund, Ukraine  Let us introduce our guest, Daniel Kashnitsky, Capacity Building Manager from TB Europe Coalition. Daniel came to Odessa for a three-day visit to do research into our experience in active finding of missing people with tuberculosis. Daniel found time to answer a few questions for our journal. Daniel, tell us about TB Europe Coalition and its main activities. TB Europe Coalition (TBEC) was created as a network of civil society organizations working in the WHO European Region in 2009. In 2018, the TBEC secretariat was founded in Kiev, Ukraine to be closer to the region of Eastern Europe and Central Asia (EECA), where some of TBEC’s main projects and the most affected countries of the WHO European Region are located. TBEC has two main objectives – to develop the capacity of activists in advocacy, including supporting more local activities as well as civil society campaigns at national and international level, not to mention developing organizations’ capacity in direct service provision. TBEC has three thematic areas: budget advocacy – here we particularly mean the transition of TB services to national More…

Voices in the fight: Shamsiya

Voices in the fight: Shamsiya

This post is comes from our partners in Tajikistan and tells the story of Shamsiya and her family experience with TB. This story was written by our partners in Tajikistan, Safar and Abdusamd. Shamsiya’s Story  “At night, when I hear the sound of any vehicle stopping near my house, I feel so scared. I think this is somebody bringing more bad news. I am worried about my father,” narrates Shamsiya as she bursts into tears. Shamsiya is a citizen of Tajikistan. Over the course of two decades she has watched nine of her family members succumb to the harrowing consequences of tuberculosis. Today, Shamsiya and her father are the only members still alive out of a large family who were once living happily before the killer disease, TB, found its way into their lives. Shamsiya’s family knew very little about TB before 1994. It was in this year that her eldest sister suddenly began to vomit blood and was immediately taken to hospital.  One and a half months later and Shamsiya’s sister unexpectedly died. Just over a decade later and the family’s troubles with TB returned. In 2006, both Shamsiya’s mother and her 24-year-old brother fell ill with a cough and More…

Marina's story - fighting drug resistant TB in 3 different countries

Marina’s story – fighting drug resistant TB in 3 different countries

Marina is a Romanian citizen who was studying law at the University of Manchester in the UK when she was diagnosed with multidrug-resistant TB (MDR-TB). Marina was studying abroad in Lyon, France in summer 2012 when she developed a cough that would not go away. Her symptoms led her down a long road of doctors and tests as various French doctors struggled to identify a disease many believe no longer exists in Europe. One doctor even diagnosed Marina with hay fever and gave her medicines to ease hay fever symptoms. Despite multiple doctor visits, Marina’s symptoms failed to subside. Marina began to suspect her condition could be related to her lungs – possibly TB – after researching her symptoms online. Marina found a clinic that offered TB tests and had a lung x-ray done. The x-ray established there was something seriously wrong with her lungs, and she was referred for a CT scan. The CT scan confirmed there was a problem with her lungs but couldn’t determine what it was specifically, so Marina was referred for a bronchoscopy – a procedure in which a doctor interested a tube attached to a camera through Marina’s nose and down her airways to examine More…

Story from Moldova: TB for 20 years with no hope of recovery

Story from Moldova: TB for 20 years with no hope of recovery

Today we’re sharing a story from TBEC members Act for Involvement, who are based in Moldova. If you’d like to share a story of your work or experience with TB then please do get in touch with bruce.warwick@results.org.uk. Chased by tuberculosis for more than twenty years, Igor (42), from the small town Anenii Noi in Moldova, lives in dark hopelessness for a recovery. His wife has passed away and his children have been taken to a specialised institution. Igor, who now lives with extensively drug-resistant TB (XDR-TB), was first infected when he was 20 and was serving a prison sentence in Russia. In 2001, after being released and settling in Moldova, Igor relapsed. Four years ago he learnt that he had multidrug-resistant TB (MDR-TB). ‘So many times I started the treatment and then gave up because it was so hard, I was feeling better and had to work in order to feed my family’, recalls Igor. Last January, doctors found out that Igor’s wife and his two children, a young boy (11) and a young girl (9), all had TB and were all started on treatment. Despite these efforts, the children’s mother and Igor’s wife died just four months later. More…

MDR-TB casts a shadow over Russia

MDR-TB casts a shadow over Russia

Tuberculosis and, in particular, drug-resistant forms of the disease have long been a burden on many countries in Eastern Europe and the Russian Federation is no exception. A video recently produced by Channel 4 News in the UK highlights the growing problem that the country has with multidrug-resistant TB in the general population but also in children and in prisons. The report also raises the worrying question of what will happen to rates of MDR-TB in the country give that many international donors have now left the country, ultimately as a result of political reasons as opposed to the fact that the country has the capacity or political urge to finance TB care and control itself. We have included the report, The Rising Spectre of tuberculosis across Russia, below but you can also read Victoria Macdonald’s (Health and Social Care correspondent at Channel 4 News) blog on her trip to Russia here.

TB: Voices in the fight against a European and Worldwide epidemic

TB: Voices in the fight against a European and Worldwide epidemic

Today we’re sharing the story of Safar Naimov and his two brothers Nazarsho and Ismoil. TBEC member, Fanny Voitzwinkler, met Safar on a recent trip to Tajikistan where he told her his story. Safar lost his two brothers to MDR-TB and has just recovered from the very difficult treatment himself. He is now ‘determined to support anyone sick or vulnerable and seeks to now advocate for the elimination of tuberculosis in Europe, Central Asia and worldwide. Safar has shared with us his powerful testimony which we present below.   Testimony of Safar Naimov, 34, Tajikistan We were more like friends, me and my brother-Nazarsho. We were brought up in a large family and life was difficult following the collapse of the Soviet Union and subsequent civil war in Tajikistan. Hunger was common then. We grew up taking care of each other in all difficult moments.  We studied hard at school and we would dream of having a better life. In 2002 I was studying in India while my brother Nazarsho worked as an interpreter in Dushanbe. He was the only member of our family earning money. Nazarsho lived in a hostel with bad sanitation, as is the case with most More…

'Here I Am' campaign illustrates successful impact of the Global Fund in fighting HIV, TB and Malaria

‘Here I Am’ campaign illustrates successful impact of the Global Fund in fighting HIV, TB and Malaria

The ‘Here I Am’ campaign, a global call on world leaders to save millions of lives by supporting a fully funded Global Fund, has been releasing a number of engaging video testimonials to highlight the positive impact that the Global Fund has had in fighting AIDS, TB and Malaria. The videos account first hand the struggles people have gone through when faced with either of these three diseases but also, importantly, the fact that many of them now have the help and hope they need to overcome them and enable them to live healthy and happy lives.  By featuring the stories from all over the world of those directly affected and the turnaround in their fortunes thanks to the Global Fund support, and combining these with campaign ambassadors, online actions, and on-the-ground mobilisations, the campaign is aiming to, build the collective power to end three of the world’s most deadly diseases. One of these powerful testimonies comes from Yevhen Selin from Ukraine. Yevhen tells of his experiences as a teenager with injecting drugs and addiction and how this led to both periods in jail as a young man. Having served half a sentence, Yevhen left prison determined to give up More…

Tackling TB in Moldova: Speranta Terrei and the importance of civil society organisations

Tackling TB in Moldova: Speranta Terrei and the importance of civil society organisations

The Republic of Moldova has a considerable TB problem. In 2011, out of a population of 3 million, 4,208 people were diagnosed with TB. Compare this to the 3,528 people diagnosed with TB in Germany, out of a population of 82 million, and the alarming rate of TB in Moldova really hits home. Moreover, Moldovan has a high burden of multi-drug resistant TB (MDR-TB) that makes tackling the problem significantly more difficult. 19 percent of all new cases of TB in Moldova are estimated to be MDR and 51 percent of all retreated cases. To add to the problem, Moldova is also a predominantly rural country. This not only makes carrying out national TB prevention programmes much harder, but it also increases the chances of patients not being able to complete treatment as a result of having to travel much longer distances to reach treatment than those who live in cities. Some patients are also too weak to walk far or even lack money for a bus fare to take a trip to a dispensary. If treatment isn’t completed or stopped early drug-resistant strains can emerge, thus further compounding the problem of MDR-TB. There are, however, civil society organisations that More…

Remembering Iulian: A European Voice in the fight against TB

Remembering Iulian: A European Voice in the fight against TB

Last year, RESULTS UK, along with valuable input from GHA France and members of the TB Europe Coalition, came out with a report called “Tuberculosis: Voices in the Fight Against the European Epidemic“. This report featured the story of Iulian, a Romanian struggling to fight MDR-TB. Jonathan Stillo, who also featured in our report, informed us of the sad news that Iulian unfortunately developed XDR-TB and passed away a few weeks ago, leaving behind a wife and two children. Jonathan has written a very moving obituary titled “An Obituary for Iulian, a Romanian XDR-TB Patient, Husband, Father, and my Friend.” The following is an excerpt from it: On May 5th 2012, Romania lost one of its most loving citizens at the young age of 42. This is an obituary for Iulian Ilie Dobre, one of the 1,500 Romanians who die of tuberculosis (TB) every year. When desperately poor people like him die, few people notice. Beyond his immediate family, I don’t know how many will miss him. But Iulian’s death matters. It matters to me and it should matter to you. Even though this man had virtually nothing in this world, he had a wife and little girl who are More…

wink.pink