CS HearingThe UN High-Level Meeting on TB is fast-approaching and the recent Interactive Civil Society Hearing represented an important milestone. This was a chance for civil society representatives, as well as academics, parliamentarians, the private sector, and other stakeholders, from all over the world to voice up their positions and make recommendations for a successful High-Level Meeting.

The discussions centred around four themes linking to key asks of the Global TB community for UN HLM on TB – reaching all people ill and affected by TB, financing, innovation, and partnerships to prioritise communities in an equitable, person-centred, rights-based response. As noted in the official summary, panellists and interventions from the floor stressed the need for stronger accountability at all levels, to eliminate catastrophic costs faced by people with TB, to accelerate research and development for innovation to end TB, and to ensure that the TB response is human rights based and people-centred.

Each panel opened with a voice representing TB survivors from around the world, including Paula Rusu from Romania who stressed the need for research and development for new tools including an effective vaccine for all, “TB doesn’t discriminate, but TB research and funding does. I had one of the easiest to treat forms of TB, and I lost a lung.”Paula Rusu

Many other voices from the European and Central Asian regions made powerful interventions from the floor, for example Yuliya Chorna, member of the Affected Communities and Civil Society Advisory Panel, intervened on the importance of quality people-centred care with integrated psychosocial support for treatment adherence and effectiveness, as well as quality of life of persons with TB, and Safar Naimov, who is a multi-drug resistant TB (MDR-TB) survivor and tragically lost two of his broYuliyathers to MDR-TB, spoke of the need for financial, social and psychological as well as medical support for people with TB.

The need for strong accountability to result from the High-Level Meeting was highlighted throughout the panels, notably the need an independent global mechanism as well as regional and national multi-sectoral accountability bodies.

Since the Hearing, the missions in New York have been discussing and debating what the polSafaritical declaration will look like. As civil society representatives, we can now continue to encourage our Heads of State and Government to attend the High-Level Meeting and to advocate with government representatives on making concrete commitments during the meeting, as well as advocate for inclusion of the representatives of the civil society and affected communities in the countries’ delegation. As the UNGA president said, “you are on the frontline of the battle and must be part of the solution.”

For more information, or if you have any questions, please contact rachael.hore@results.org.uk.


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